Well after much anticipation about that dreaded hand surgery date, we have finally been given a date of JUNE 6th!! Although we would have liked his first hand surgery to take place in May, we are also at the mercy of the Dr's schedule and just the fact that we finally have a date is a blessing. The surgery will take place in Boston. When I was pregnant with Cam and we were researching Dr's that we would want to be in charge of Cam's care, we heard about a Dr. in Boston named Joseph Upton. Another family whose little boy has Apert recommended him, and had used him years ago when their son needed the surgery.
So we did some research and decided that we would definitely like to meet this so called miracle hand man. After Cam was born, we called their office and set up a consultation for December. So on December 14th we flew up to Boston and met Dr. Upton. He was fantastic, in all honesty not a real conversationalist, but definitely knew his stuff, and was amazing with Cameron. He said that he would be able to give Cam 5 fingers on each hand, and that they would look great. He said that he has all of his joints in the fingers so that he will probably have full range of motion when his hands finally heal.
This was great news to us, but not for our wallets. Even though we have insurance for Cameron, we are still going to have alot of expenses with this trip, but we are dedicated to giving Cameron the best, and this Dr. is just that. I hate that money has to be a concern for these things. I wish that some famous basketball or sports star would just bump into me one day at the grocery store, and donate a ton of money towards Cameron's medical bills.....no harm in wishful thinking right? So if any of you readers out there are famous millionaires then we would like to invite you to dinner!!!! heheh... On a more serious note, we are just grateful that Dr. Upton is going to be able to do Cameron's surgery and that we now have a definite date, so Boston, HERE WE COME!!
Great to hear! tell Dr. Upton we say hello. the hotel on the same street as the hospital will give you a discount if you have a patient at Childrens. makes it a bit easier to have the room close by so you two can take rest shifts but still be close by.
ReplyDeleteContact the Children's Craniofacial Assoc. They help pay for food, travel and lodging if you need to travel for surgeries. They helped us and payed for our hotel room and for our food when we traveled to Texas for Carson's hands and feet surgery.
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