In December of 2009, My husband and I became pregnant with our first child. We had been married for 2 years, and although we wanted children, we were not planning on this pregnancy, but greatfully took it and were excited about starting our new journey into parenthood. I officially found out I was expecting on January 16th of 2010, thus starting this crazy journey that we have been on for the past seven months.
When I was 18 weeks pregnant we went to that glorious appointment to find out whether we were going with Cameron of Ava...(our decided upon names). Not only did we discover that Cameron would be here in mid September, but we were also told that he had something called mild ventriculomegally. This meant that in one of the ventricles in his brain there was a little extra fluid. We were assured that this was probably not a big deal, and that usually these things resolve themselves, but we were told that we needed to have a follow up with a specialist to make sure everything remained unchanged.
This news terrified us. No one wants to hear that there could be something wrong with thier baby...and we were very worried that this meant something was wrong. However two weeks later and after much anxiety we went back for another ultrasound and at this one everything looked great! The fluid had decreased and the ultrasound wich was 4D showed a very healthy, very active 20 week old fetus. So onto planning for our sweet baby Cameron it was. They wanted us to come back 4 weeks later for one last check to make sure the fluid stayed low, and then they said if all checked out wich they assured us it would, then we wouldn't have to come back!
4 weeks later we recieved the most horrifying news of our lives. During this ultrasound we got to see the most preciouse little face, and the most sweet little limbs, but according the the tech, it was very difficult to see his fingers. This triggered an alarm with the genticist at the office and she came into our room, and told us that she thought our baby....our perfect, wonderful, little boy had APERTS SYNDROME. Aperts syndrome? What the heck is that, we asked. Then in a blur we listened as she explained the charicteristics and what all could possibly be wrong. I cried and so did my husband, as we sat in the car and wondered how and why. What had we done to deserve this kind of news? How could we be those people that had a baby with problems? WHY....HOW.....We were crushed.
When I was 18 weeks pregnant we went to that glorious appointment to find out whether we were going with Cameron of Ava...(our decided upon names). Not only did we discover that Cameron would be here in mid September, but we were also told that he had something called mild ventriculomegally. This meant that in one of the ventricles in his brain there was a little extra fluid. We were assured that this was probably not a big deal, and that usually these things resolve themselves, but we were told that we needed to have a follow up with a specialist to make sure everything remained unchanged.
This news terrified us. No one wants to hear that there could be something wrong with thier baby...and we were very worried that this meant something was wrong. However two weeks later and after much anxiety we went back for another ultrasound and at this one everything looked great! The fluid had decreased and the ultrasound wich was 4D showed a very healthy, very active 20 week old fetus. So onto planning for our sweet baby Cameron it was. They wanted us to come back 4 weeks later for one last check to make sure the fluid stayed low, and then they said if all checked out wich they assured us it would, then we wouldn't have to come back!
4 weeks later we recieved the most horrifying news of our lives. During this ultrasound we got to see the most preciouse little face, and the most sweet little limbs, but according the the tech, it was very difficult to see his fingers. This triggered an alarm with the genticist at the office and she came into our room, and told us that she thought our baby....our perfect, wonderful, little boy had APERTS SYNDROME. Aperts syndrome? What the heck is that, we asked. Then in a blur we listened as she explained the charicteristics and what all could possibly be wrong. I cried and so did my husband, as we sat in the car and wondered how and why. What had we done to deserve this kind of news? How could we be those people that had a baby with problems? WHY....HOW.....We were crushed.
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